Campaign to act against avoidable deaths from SUDEP

Friday, 09 September 2016

A new campaign has been launched by the charity Epilepsy Society calling on the Health Secretary, Jeremy Hunt, to act against avoidable deaths in epilepsy by carrying out a National Clinical Audit.

The Epilepsy Society said “Only by understanding more about the current weakness in care management can care be directed where it is needed.”

According to the charity almost 4 in 10 deaths in epilepsy are avoidable. They have said that better care, treatments and services are needed urgently.

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no other cause of death is found. For people with severe epilepsy there is a 1:100-300 risk of death through SUDEP. The risk is highest for people in their 20s and 30s, who have seizures at night, are on combinations of medication and/or who are not monitored in specialist settings.

At Independence Homes we provide fully trained 24 hour waking night staff to ensure all risks related to epilepsy are minimised.

Our medical team consists of a doctor specialising in neurology, an epilepsy specialist, epilepsy nurse and a medical resource officer. We can also utilise a team of conventional and complementary therapists. The medical team are on call 24 hours a day and provide support and training in the clinical management of each individual’s epilepsy and advice regarding all other needs.

All of our staff are extensively trained, tested and monitored to ensure they have a thorough knowledge of epilepsy and can administer emergency medication.

We use a range of monitors and specialist epilepsy alarms to ensure all seizures are noticed recorded, responded to and treated effectively.

By providing sufficient treatment and care we hope to decrease the risk of SUDEP in all our service users.
Our epilepsy nurse and specialist also provide external training to professionals in order to promote awareness and knowledge of epilepsy.


To read the full ‘Independent’ article visit: